Launch of Collaborative Report into Children’s Cancer Service

 In Community Specialists, News
A collaborative report finds children’s cancer services in Northern Ireland benefit from cutting-edge support provided by Cancer Fund for Children.

On Tuesday 4th June 2019 a research team led by Dr Karen Galway, Lecturer in Mental Health from the School of Nursing and Midwifery at Queen’s University Belfast, launched a new report in collaboration with Cancer Fund for Children and Ulster University.

The launch took place at Daisy Lodge, our purpose built residential centre, exclusively for children, young people and families impacted by cancer to retreat, relax and rejuvenate, in the peace and tranquillity of the Mourne Mountains.

The report reviews over twenty years of international research on the benefits of psychosocial supportive services for children and young people with cancer. The evidence was categorised and mapped into the areas of hospital, community and residential support services provided by Cancer Fund for Children.

Pioneering and Innovative Support

Across six distinct services we provide, the collaborative team pinpointed features of our services that match those in the published literature that have a positive impact on how young people with cancer cope and adjust.

The most robust international evidence suggests therapeutic ‘camps’ and short breaks, coping skills programmes and informal time and space for peer support can improve family communications and help young people with cancer make transitions back to school and into survivorship. The mapping indicates that we are working at the cutting-edge of the evidence base and also pioneering new and innovative support for children and young people with cancer.

The launch featured highlights from the report as well as an update on development plans from our CEO, Phil Alexander. A very impressive personal insight was shared by one teenager, Zoe Gilmore, who reflected on how beneficial Cancer Fund for Children’s support was for her when she was diagnosed with a brain tumour at 15 years old.

Zoe in conversation with Neil

Speaking at the launch Zoe commented,

“One of the biggest challenges I faced was feeling like I being treated differently by my friends and family.  Going on a residential with Cancer Fund for Children was amazing.  I got to meet other young people going through a similar experience, and have fun.  Nobody treated each other differently because of our diagnosis.  We were all the same.  It was amazing getting to know other young people the same age, knowing that they have dealt with the same thing I had experienced.  Thanks to Cancer Fund for Children I know how to express my feelings more, because bottling things up doesn’t help.”

The event was attended by our team of Cancer Support Specialists, representatives from The Teenage Cancer Trust and other leading cancer charities in NI, as well as specialists from NI’s acute cancer services and leading academics working in psychooncology.

Guests gathered after the launch to discuss how to move forward with the collaborative work, to address the gaps in the evidence base and to extend our collaboration to the global community, working to improve services for children and young people experiencing cancer.

Read The Full Report Here

“O’Rourke C, Galway K, Semple C, Ballantine J (2019) “Literature review and mapping of services for children and young people with cancer” Queen’s University Belfast and Cancer Fund for Children

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